I have been awake since before 5am, trying to fill my time constructively and to keep me as calm as possible. We are on the countdown for Colton's 2nd surgery today.
Both Colton & I got special blessings last night (a 2nd one for me) to be ready for today. I will be going up with Colton by myself, which I am trying to not be worried about. This last 2 weeks have been crazy with appts trying to get ready for today. Preston will be working from home with the kids to try to get them caught up on all their school work and back on track with lessons and things.
Colton has been a trooper this last couple of weeks. We fell into a pretty good routine with his meds, bandages, etc. He has been counting down every day until he saw Dr Milzcuk on Monday, and was more than happy to tell everyone he was going in for surgery again.
He has also been excited to show everyone his mouth - he lost another tooth on Monday and will most likely lose a 2nd tooth in the next few days (or less). He has been thrilled that the tooth fairy is so generous and he has been able to get some new Hot Wheels cars from the store that he has been able to pay for all by himself.
He is taking all of this upheaval to our schedule in stride and looks forward to his time with all of his specialists. I am not taking it so well, though I know that we are very blessed to have such wonderful people caring for Colton and our family for medical and educational needs.
Since he had eating/drinking restrictions for the later surgery time, he and I stayed up until midnight having snacks and drinks and watching a movie. He also got a real bath and a haircut last night from his dad, knowing it will be a couple of weeks before we can even attempt a "spit" bath for him, and a hair cut wont happen until the bandages are completely off again.
Someone yesterday asked me if things will be "done" after his surgery today. This someone doesnt know us quite yet and I had an interesting time explaining that we have added stuff back into our schedule vs taking things away. Hopefully, though, all the appts will become more consistent. We can just plan to take one day, or even one week at a time, and go from there. I know I am going to be away alot more, and that may be tricky and harder for the big kids to make sure their school work is done. We will just keep doing the best that we can, and be sure to keep in constant contact with the kids' teachers. So far, everyone has been really great to understand and to work with us to keep the kids working well and to help them be successful in the things they are completing.
Well, guess that is all for now. Will plan to post more throughout the day. For now, I need to go eat and finish packing so we are ready to go in an hour. Thanx to everyone for your thoughts/prayers for Colton and our family. It really means so much.
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